Living with Hemolytic-uremic syndrome
A kidney condition in which damaged red blood cells clog the kidneys' filters, most often affecting children.
Understanding Hemolytic-uremic syndrome
Damaged red blood cells clog the glomeruli, the tiny filters in the kidneys, so the kidneys cannot do their job. This can lead to acute kidney injury, a sudden and temporary loss of kidney function. GARD says HUS is the most common cause of acute kidney injury in children.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet. Based on the summary, it can lead to:
- Red blood cell destruction
- Clogged kidney filters
- Sudden loss of kidney function (acute kidney injury)
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include kidney specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Kidney specialists (nephrologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with National Kidney Foundation and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD explains that red blood cells are destroyed and then block the kidneys' filters. It doesn't describe what triggers this.
Also known as: gasser's syndrome; haemolytic-uraemic syndrome; hemolytic uremic syndrome; hus; hus - hemolytic uremic syndrome
Patient organizations
- National Kidney FoundationKidney diseases · United States
- Renal Support NetworkKidney diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Hemolytic-uremic syndrome.
Explore research for Hemolytic-uremic syndrome
Explore actively recruiting Hemolytic-uremic syndrome studies with HealthSpark.
Find actively recruiting studies for Hemolytic-uremic syndrome with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
Powered by HealthSpark, our AI chat helper
I can help you find recruiting Hemolytic-uremic syndrome studies. Enter a ZIP code, address or city below and I'll look within 50 miles.
Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
Get Signals for Hemolytic-uremic syndrome
Stay in the loop with community stories and updates from medical researchers.
Create a living journal that talks back
HealthStory evolves private journaling with a living AI journal that talks back and asks thoughtful questions, helping you capture your Hemolytic-uremic syndrome experiences more deeply and prepare for better conversations with your doctors and care team.
Your journal is private. Sharing your story publicly is a separate choice, made with Share your story above.