Living with Grayson-Wilbrandt corneal dystrophy
An extremely rare eye condition with cloudy patterns in a layer of the cornea.
Understanding Grayson-Wilbrandt corneal dystrophy
The cloudiness takes different patterns and extends toward the surface (epithelium) of the cornea. Vision can range from reduced to normal. It is usually noticed from childhood into adulthood.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet. The summary describes cloudy areas in the cornea and vision that ranges from reduced to normal.
- Cloudy patterns in the cornea
- Vision ranging from reduced to normal
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include eye disease specialists and genetic specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Eye disease specialists (ophthalmologists); Genetic specialists (geneticists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Corneal Dystrophy Foundation
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
Changes in genes cause this condition. It is inherited in an autosomal dominant way, which means one changed copy of a gene can be enough. GARD does not name the gene.
Also known as: grayson wilbrandt corneal dystrophy; grayson wilbrandt dystrophy of cornea; gwcd
Patient organizations
- Corneal Dystrophy FoundationGrayson-Wilbrandt corneal dystrophy · United States
You are more than your diagnosis
Perspectives from people navigating life with Grayson-Wilbrandt corneal dystrophy.
Explore research for Grayson-Wilbrandt corneal dystrophy
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- Recruiting studies from ClinicalTrials.gov
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- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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