Living with Granulomatous slack skin disease
A very rare skin condition with loose, hanging skin in the folds of the body, often linked with certain lymphomas.
Understanding Granulomatous slack skin disease
Signs include loose hanging skin and fine wrinkling or small bumps, most often in the armpits, groin, and stomach area. It is often linked with mycosis fungoides and other lymph system cancers such as Hodgkin and non-Hodgkin lymphoma. It is usually noticed in adulthood.
Signs & symptoms
Symptoms vary from person to person. GARD lists these among the most common:
- Loose, hanging skin
- Fine wrinkling of the skin
- Skin redness
- Stiff skin
- Lymphoma, in some people
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include blood and bone marrow specialists, cancer specialists and skin, hair, and nail specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Blood and bone marrow specialists (hematologists); Cancer specialists (oncologists); Skin, hair, and nail specialists (dermatologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Lymphoma Research Foundation and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says the cause is unknown, but it is often associated with mycosis fungoides and other lymph system disorders such as Hodgkin and non-Hodgkin lymphoma.
Also known as: granulomatous slack skin
Patient organizations
- Lymphoma Research FoundationGranulomatous slack skin disease · United States
- Children's Skin Disease FoundationSkin diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Granulomatous slack skin disease.
Explore research for Granulomatous slack skin disease
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- Recruiting studies from ClinicalTrials.gov
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- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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