Living with Graham Little-Piccardi-Lassueur syndrome
A rare scarring hair loss condition, mostly in adult women, with patchy scalp hair loss and rough bumps around hair follicles.
Understanding Graham Little-Piccardi-Lassueur syndrome
It is most common in otherwise healthy adult women. It has three features: progressive patchy scarring hair loss on the scalp, non-scarring thinning of hair in the armpits and groin, and spiky rough bumps around hair follicles (follicular lichen planus).
Signs & symptoms
Symptoms vary from person to person. GARD lists these among the most common:
- Patchy scarring hair loss on the scalp
- Thinning of armpit and pubic hair
- Rough, spiky bumps around hair follicles
- Itching, sometimes severe
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include skin, hair, and nail specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Skin, hair, and nail specialists (dermatologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Scarring Alopecia Foundation and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: graham little piccardi lassueur syndrome; graham little syndrome; picardi-lassueur-little syndrome; piccardi lassueur little syndrome; piccardi-lassueur-little syndrome
Patient organizations
- Scarring Alopecia FoundationGraham Little-Piccardi-Lassueur syndrome · United States
- Children's Skin Disease FoundationSkin diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Graham Little-Piccardi-Lassueur syndrome.
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- Recruiting studies from ClinicalTrials.gov
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- Eligibility is confirmed by the study team
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