Living with Gliomatosis cerebri
A cancerous brain tumor in which tumor cells spread widely through several areas of the brain.
Understanding Gliomatosis cerebri
It involves at least three lobes of the cerebrum, the main part of the brain, and may affect both sides. There are two types. Type 1 has scattered, widespread tumor cells and no clear mass. Type 2 is similar but also has a detectable mass. It is usually noticed in adulthood.
Signs & symptoms
Symptoms vary from person to person. GARD says they may include:
- Personality changes
- Memory problems
- Headaches
- Seizures
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include brain and nervous system specialists and cancer specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Brain and nervous system specialists (neurologists); Cancer specialists (oncologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Children's Brain Tumor Foundation and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: astrocytosis cerebri; gliomatosis; gliomatosis cerebri (morphologic abnormality)
Patient organizations
- Children's Brain Tumor FoundationGliomatosis cerebri · United States
- National Brain Tumor SocietyGliomatosis cerebri · United States
- Pediatric Brain Tumor FoundationGliomatosis cerebri · United States
You are more than your diagnosis
Perspectives from people navigating life with Gliomatosis cerebri.
Explore research for Gliomatosis cerebri
Explore actively recruiting Gliomatosis cerebri studies with HealthSpark.
Find actively recruiting studies for Gliomatosis cerebri with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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