Living with Giant cell tumor of bone
A noncancerous but locally aggressive bone tumor, usually at the ends of the long bones or in the spine, found in adults.
Understanding Giant cell tumor of bone
It usually arises from the ends of long bones or the vertebrae. It is usually noticed in adulthood. People may have pain, swelling, and less movement in the affected joint.
Signs & symptoms
GARD doesn't list a full symptom list for this condition. The summary describes these:
- Pain
- Swelling
- Reduced range of motion in the affected joint
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include bone and joint specialists and cancer specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Bone and joint specialists (orthopedists or orthopedic surgeons); Cancer specialists (oncologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with rare disease patient organizations for support
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: benign bone giant cell tumor; benign bone giant cell tumour; bone giant cell tumor; gct of bone; giant cell neoplasm of bone; giant cell tumor of bone (morphologic abnormality)
Patient organizations
Rare-disease groups that can help
- Global GenesRare Diseases · United States
- National Organization for Rare DisordersRare Diseases · United States
- Genetic AllianceRare Diseases · United States
- RARE FoundationRare Diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Giant cell tumor of bone.
Explore research for Giant cell tumor of bone
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- Eligibility is confirmed by the study team
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