Living with Generalized peeling skin syndrome
An inherited skin condition in which the top layer of skin peels over much of the body.
Understanding Generalized peeling skin syndrome
There are two subtypes. Type A has white scaling and non-inflamed peeling of the surface of the skin. Type B has patchy peeling over all of the skin with underlying redness (erythroderma), itching, and allergy-related conditions (atopy). It is usually noticed in the newborn period or infancy.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet. The summary describes peeling skin, scaling, and in type B redness and itching.
- Peeling of the top layer of skin
- White scaling of the skin (type A)
- Skin redness (erythroderma) in type B
- Itching (pruritus) in type B
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include genetic specialists and skin, hair, and nail specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Foundation for Ichthyosis and Related Skin Types may keep lists of experts for this condition.
Care & treatment
- Care team
- Genetic specialists (geneticists); Skin, hair, and nail specialists (dermatologists)
- Expert care
- Expert lists: Foundation for Ichthyosis and Related Skin Types
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Foundation for Ichthyosis and Related Skin Types and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
Changes in genes cause this condition. A child inherits a changed copy of the gene from each parent (autosomal recessive). GARD does not name the gene.
Also known as: generalised deciduous skin; generalised pss; generalized deciduous skin; generalized pss; peeling skin syndrome type 1
Patient organizations
- Foundation for Ichthyosis and Related Skin TypesIchthyosis · United States
- Children's Skin Disease FoundationSkin diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Generalized peeling skin syndrome.
Explore research for Generalized peeling skin syndrome
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