Living with Ganglioglioma
A rare brain tumor that usually grows slowly and is considered noncancerous.
Understanding Ganglioglioma
It forms when a single brain cell starts to divide into more cells. Most gangliogliomas grow slowly and are considered benign. Up to 10% may grow more quickly and become malignant, meaning the tumor affects the surrounding brain tissue.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet.
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include brain and nervous system specialists and cancer specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Alex's Lemonade Stand Foundation may keep lists of experts for this condition.
Care & treatment
- Care team
- Brain and nervous system specialists (neurologists); Cancer specialists (oncologists)
- Expert care
- Expert lists: Alex's Lemonade Stand Foundation
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Alex's Lemonade Stand Foundation and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
It can happen when a cell randomly gains changes in genes that control how the cell divides.
Also known as: cns ganglioglioma; glioneuroma; mixed cell tumors containing both neural ganglionic cells and neural glial cell components; neuroastrocytoma
Patient organizations
- Alex's Lemonade Stand FoundationGanglioglioma · United States
- National Brain Tumor SocietyGanglioglioma · United States
- Pediatric Brain Tumor FoundationGanglioglioma · United States
You are more than your diagnosis
Perspectives from people navigating life with Ganglioglioma.
Explore research for Ganglioglioma
Explore actively recruiting Ganglioglioma studies with HealthSpark.
Find actively recruiting studies for Ganglioglioma with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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