Living with Fuchs heterochromic iridocyclitis
An unusual long-lasting eye inflammation (uveitis), usually in one eye of a young adult, with floaters, blurry vision and different-colored eyes.
Understanding Fuchs heterochromic iridocyclitis
It is considered in people with floaters, vision loss, and different-colored eyes (heterochromia). It often affects young adults and usually involves one eye. People with FHI are at risk for cataract, glaucoma, and clouding of the jelly-like fluid in the eyeball.
Signs & symptoms
Symptoms vary from person to person. GARD lists these among the most common:
- Eye floaters
- Blurred vision
- Different-colored eyes (heterochromia)
- Cataract
- Thinning of the iris (iris atrophy)
- Inflammatory cells in the eye
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include eye disease specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Ocular Immunology and Uveitis Foundation may keep lists of experts for this condition.
Care & treatment
- Care team
- Eye disease specialists (ophthalmologists)
- Expert care
- Expert lists: Ocular Immunology and Uveitis Foundation
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Ocular Immunology and Uveitis Foundation
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
The cause is not known.
Also known as: fhi; fuch's heterochromic iridocyclitis; fuchs heterochromic cyclitis; fuchs heterochromic uveitis; fuchs uveitis syndrome; fuchs' heterochromic cyclitis
Patient organizations
- Ocular Immunology and Uveitis FoundationFuchs heterochromic iridocyclitis · United States
You are more than your diagnosis
Perspectives from people navigating life with Fuchs heterochromic iridocyclitis.
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