Living with Finger clinodactyly
A rare inherited condition in which one or more fingers, most often the pinky, bend sideways, with no other health problems.
Understanding Finger clinodactyly
It occurs without other associated problems. The bending is usually in both hands. X-rays show trapezoid- or triangle-shaped finger bones.
Signs & symptoms
GARD doesn't list a separate symptom list. Its summary describes:
- Finger bent sideways
- Usually the fifth (pinky) finger
- Usually in both hands
- Triangle- or trapezoid-shaped finger bones on X-ray
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include bone and joint specialists and genetic specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Bone and joint specialists (orthopedists or orthopedic surgeons); Genetic specialists (geneticists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with rare disease patient organizations for support
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
Changes in genes cause it. GARD doesn't name a gene or describe how it is inherited, but notes it affects several members of a family.
Also known as: congenital clinodactyly of finger; congenital crooked finger; curvature of finger; familial isolated clinodactyly of fingers
Patient organizations
Rare-disease groups that can help
- Global GenesRare Diseases · United States
- National Organization for Rare DisordersRare Diseases · United States
- Genetic AllianceRare Diseases · United States
- RARE FoundationRare Diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Finger clinodactyly.
Explore research for Finger clinodactyly
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- Recruiting studies from ClinicalTrials.gov
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- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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