Living with Fibrosarcoma
A rare cancer that starts in cells that form fibrous, scar-like tissue in soft tissue or bones.
Understanding Fibrosarcoma
It is a malignant tumor, which means the cancer cells can grow into nearby areas and may spread to other parts of the body. It can occur at any time in life.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet.
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include bone and joint specialists and cancer specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Sarcoma Foundation of America may keep lists of experts for this condition.
Care & treatment
- Care team
- Bone and joint specialists (orthopedists or orthopedic surgeons); Cancer specialists (oncologists)
- Expert care
- Expert lists: Sarcoma Foundation of America
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Sarcoma Foundation of America and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: fibrosarcoma - not infantile; fibrosarcoma (disease); fibrosarcoma (excluding infantile fibrosarcoma); fibrosarcoma of soft tissue; fibrosarcoma, malignant; fibrous tissue neoplasm
Patient organizations
- Sarcoma Foundation of AmericaFibrosarcoma · United States
- American Cancer SocietyFibrosarcoma · United States
You are more than your diagnosis
Perspectives from people navigating life with Fibrosarcoma.
Explore research for Fibrosarcoma
Explore actively recruiting Fibrosarcoma studies with HealthSpark.
Find actively recruiting studies for Fibrosarcoma with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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