Living with Febrile ulceronecrotic Mucha-Habermann disease
A rare, severe skin condition with sudden, large, painful skin ulcers and fever, more often in children.
Understanding Febrile ulceronecrotic Mucha-Habermann disease
PLEVA causes skin lesions that break down into open sores and then form a red-brown crust. FUMHD often starts as PLEVA but quickly progresses to large, destructive ulcers. Fever and painful skin loss can occur, and ulcers can become infected. It is diagnosed with a skin biopsy. It occurs more often in children and in males.
Signs & symptoms
GARD doesn't list a separate symptom list. Its summary describes:
- Skin lesions that become open sores
- Red-brown crusts
- Large, destructive skin ulcers
- Fever
- Painful loss of skin tissue
- Infection of the ulcers
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Your doctor may refer you to a specialist who knows rare conditions.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Autoimmune Association may keep lists of experts for this condition.
Care & treatment
- Care team
- A doctor familiar with rare conditions, plus specialists as needed
- Expert care
- Expert lists: Autoimmune Association
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Autoimmune Association
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: febrile ulceronecrotic pityriasis lichenoides acuta
Patient organizations
- Autoimmune AssociationFebrile ulceronecrotic Mucha-Habermann disease · United States
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Perspectives from people navigating life with Febrile ulceronecrotic Mucha-Habermann disease.
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