Living with Familial recurrent peripheral facial palsy
A rare nerve condition with sudden weakness on one side of the face that goes away on its own and may come back.
Understanding Familial recurrent peripheral facial palsy
The weakness does not get worse over time and goes away on its own, but it may come back with no obvious trigger. It can start anywhere from childhood to adulthood.
Signs & symptoms
GARD doesn't list a separate symptom list. Its summary describes:
- Sudden weakness on one side of the face
- Episodes that clear up on their own
- Episodes that may return
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include brain and nervous system specialists and genetic specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
The Foundation for Peripheral Neuropathy may keep lists of experts for this condition.
Care & treatment
- Care team
- Brain and nervous system specialists (neurologists); Genetic specialists (geneticists)
- Expert care
- Expert lists: The Foundation for Peripheral Neuropathy
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Facial Paralysis & Bell's Palsy Foundation and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
Changes in genes cause it. It is autosomal dominant, which means one changed copy of a gene is enough. GARD doesn't name the gene.
Also known as: familial recurrent bell palsy
Patient organizations
- Facial Paralysis & Bell's Palsy FoundationFamilial recurrent peripheral facial palsy · United States
- The Foundation for Peripheral NeuropathyPeripheral neuropathy · United States
- Neuropathy Action FoundationPeripheral neuropathy · United States
You are more than your diagnosis
Perspectives from people navigating life with Familial recurrent peripheral facial palsy.
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