Living with Familial prostate carcinoma
Prostate cancer that clusters in a family, sometimes linked to inherited gene changes.
Understanding Familial prostate carcinoma
Most prostate cancer occurs in people with no family history. About 5% to 10% of cases are believed to be mainly caused by an inherited tendency. Other cases are likely due to a mix of genes and shared factors like environment and lifestyle.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet.
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Your doctor may refer you to a specialist who knows rare conditions.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
FORCE: Facing Our Risk of Cancer Empowered, National Association for Continence (NAFC) and Prostate Cancer Foundation may keep lists of experts for this condition.
Care & treatment
- Care team
- A doctor familiar with rare conditions, plus specialists as needed
- Expert care
- Expert lists: FORCE: Facing Our Risk of Cancer Empowered, National Association for Continence (NAFC), Prostate Cancer Foundation
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with FORCE: Facing Our Risk of Cancer Empowered and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
In many families the genetic cause is unknown. Some cases are caused by changes in the BRCA1, BRCA2, HOXB13, or several other genes.
Also known as: hereditary prostate carcinoma
Patient organizations
- FORCE: Facing Our Risk of Cancer EmpoweredFamilial prostate carcinoma · United States
- National Association for Continence (NAFC)Familial prostate carcinoma · United States
- Prostate Cancer FoundationFamilial prostate carcinoma · United States
- ZERO Prostate CancerFamilial prostate carcinoma · United States
You are more than your diagnosis
Perspectives from people navigating life with Familial prostate carcinoma.
Explore research for Familial prostate carcinoma
Explore actively recruiting Familial prostate carcinoma studies with HealthSpark.
Find actively recruiting studies for Familial prostate carcinoma with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
Powered by HealthSpark, our AI chat helper
I can help you find recruiting Familial prostate carcinoma studies. Enter a ZIP code, address or city below and I'll look within 50 miles.
Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
Get Signals for Familial prostate carcinoma
Stay in the loop with community stories and updates from medical researchers.
Create a living journal that talks back
HealthStory evolves private journaling with a living AI journal that talks back and asks thoughtful questions, helping you capture your Familial prostate carcinoma experiences more deeply and prepare for better conversations with your doctors and care team.
Your journal is private. Sharing your story publicly is a separate choice, made with Share your story above.