Living with Evans syndrome
A very rare autoimmune condition in which the immune system destroys red blood cells, platelets, or other blood cells.
Understanding Evans syndrome
It can involve red blood cells, white blood cells, or platelets. People often have too few platelets and early destruction of red blood cells (hemolytic anemia). It can occur in childhood or adulthood.
Signs & symptoms
Symptoms vary from person to person. GARD lists these among the most common:
- Low platelet count (thrombocytopenia)
- Early destruction of red blood cells (hemolytic anemia)
- Easy bruising and tiny red spots (petechiae)
- Paleness
- Tiredness (fatigue)
- Light-headedness
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include blood and bone marrow specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Autoimmune Association and Global Autoimmune Institute may keep lists of experts for this condition.
Care & treatment
- Care team
- Blood and bone marrow specialists (hematologists)
- Expert care
- Expert lists: Autoimmune Association, Global Autoimmune Institute
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Autoimmune Association and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says the exact cause is unknown.
Also known as: autoimmune hemolytic anaemia and autoimmune thrombocytopenia; autoimmune hemolytic anemia and autoimmune thrombocytopenia; evans' syndrome; immune pancytopenia
Patient organizations
- Autoimmune AssociationEvans syndrome · United States
- Global Autoimmune InstituteEvans syndrome · United States
- wAIHA WarriorsEvans syndrome · United States
You are more than your diagnosis
Perspectives from people navigating life with Evans syndrome.
Explore research for Evans syndrome
Explore actively recruiting Evans syndrome studies with HealthSpark.
Find actively recruiting studies for Evans syndrome with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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