Living with Esthesioneuroblastoma
A rare cancer high in the nose that grows from nerve tissue tied to the sense of smell.
Understanding Esthesioneuroblastoma
It grows from nerve tissue involved in the sense of smell (the olfactory nerve). GARD says it makes up about 5% of cancers of the nasal cavity and nearby sinuses. It can occur at any age but is typically found in adulthood.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet.
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include brain and nervous system specialists and cancer specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Brain and nervous system specialists (neurologists); Cancer specialists (oncologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with American Cancer Society
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: asthesioneuroblastoma; esthesioneuroepithelioma; olfactory esthesioneuroblastoma; olfactory neuroepithelioma
Patient organizations
- American Cancer SocietyEsthesioneuroblastoma · United States
You are more than your diagnosis
Perspectives from people navigating life with Esthesioneuroblastoma.
Explore research for Esthesioneuroblastoma
Explore actively recruiting Esthesioneuroblastoma studies with HealthSpark.
Find actively recruiting studies for Esthesioneuroblastoma with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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