Living with Erythema elevatum diutinum
A skin condition with red, purple, brown, or yellow bumps caused by inflammation of small blood vessels.
Understanding Erythema elevatum diutinum
People get red, purple, brown, or yellow bumps of different sizes on or just under the skin. They are mainly on the elbows, knees, ankles, hands, and fingers. Some people also have joint pain but few other symptoms. It can occur at any time in life. Diagnosis is by symptoms and a skin biopsy.
Signs & symptoms
Symptoms vary from person to person. GARD lists these among the most common:
- Red, purple, brown, or yellow skin bumps
- Skin rash
- Joint pain
- Blisters on the skin
- Inflamed small blood vessels in the skin
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include autoimmune and inflammatory disease specialists and skin, hair, and nail specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Vasculitis Foundation may keep lists of experts for this condition.
Care & treatment
- Care team
- autoimmune and inflammatory disease specialists (rheumatologists); Skin, hair, and nail specialists (dermatologists)
- Expert care
- Expert lists: Vasculitis Foundation
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Vasculitis Foundation and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says the cause is unknown.
Also known as: eed - erythema elevatum diutinum
Patient organizations
- Vasculitis FoundationErythema elevatum diutinum · United States
- Children's Skin Disease FoundationSkin diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Erythema elevatum diutinum.
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