Living with Epithelioid sarcoma
A rare cancer of soft tissue that most often starts as a firm, painless bump on the fingers, hands, or forearms.
Understanding Epithelioid sarcoma
It can also occur elsewhere in the body. It usually starts as a painless, firm growth or bump, sometimes with an open sore (ulceration) on the skin over it. It can occur from childhood to adulthood. Diagnosis is by exam and a lab test of a small tumor sample (biopsy).
Signs & symptoms
GARD doesn't list specific symptoms for this condition. Its summary describes:
- A firm, painless growth or bump
- An open sore on the skin over the growth
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include cancer specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Cancer specialists (oncologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with American Cancer Society
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says the cause is unknown.
Also known as: epithelioid cell sarcoma; es
Patient organizations
- American Cancer SocietyEpithelioid sarcoma · United States
You are more than your diagnosis
Perspectives from people navigating life with Epithelioid sarcoma.
Explore research for Epithelioid sarcoma
Explore actively recruiting Epithelioid sarcoma studies with HealthSpark.
Find actively recruiting studies for Epithelioid sarcoma with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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