Living with Episodic angioedema with eosinophilia
A condition with repeating episodes of swelling under the skin, hives, and fever that clear up on their own.
Understanding Episodic angioedema with eosinophilia
During episodes, people may have hives, fever, swelling, and weight gain. Episodes usually come every 3 to 4 weeks and clear up on their own within several days. GARD says it does not typically involve organs or lead to other health concerns.
Signs & symptoms
Symptoms vary from person to person. GARD describes these during episodes:
- Swelling under the skin (angioedema)
- Hives (urticaria)
- Fever
- Weight gain from swelling
- High eosinophil count in the blood
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Your doctor may refer you to a specialist who knows rare conditions.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
American Partnership For Eosinophilic Disorders may keep lists of experts for this condition.
Care & treatment
- Care team
- A doctor familiar with rare conditions, plus specialists as needed
- Expert care
- Expert lists: American Partnership For Eosinophilic Disorders
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with American Partnership For Eosinophilic Disorders
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: eae; gleich syndrome; gleich's syndrome
Patient organizations
- American Partnership For Eosinophilic DisordersEpisodic angioedema with eosinophilia · United States
You are more than your diagnosis
Perspectives from people navigating life with Episodic angioedema with eosinophilia.
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