Living with Eosinophilic granulomatosis with polyangiitis
A condition with asthma, high eosinophil counts, and inflamed blood vessels that can affect many organs.
Understanding Eosinophilic granulomatosis with polyangiitis
Eosinophils are white blood cells that help fight infection. The blood vessel inflammation (vasculitis) can affect the lungs, digestive tract, skin, heart, and nervous system. It can appear at a variety of ages.
Signs & symptoms
Symptoms vary from person to person. GARD lists these among the most common:
- Asthma
- High eosinophil count in the blood
- Inflamed blood vessels (vasculitis)
- Belly pain
- Joint pain
- Tiredness (fatigue)
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include autoimmune and inflammatory disease specialists, brain and nervous system specialists, heart and blood vessel specialists and kidney specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
American Partnership For Eosinophilic Disorders, Autoimmune Association and Vasculitis Foundation may keep lists of experts for this condition.
Care & treatment
- Care team
- autoimmune and inflammatory disease specialists (rheumatologists); Brain and nervous system specialists (neurologists); Heart and blood vessel specialists (cardiologists); Kidney specialists (nephrologists)
- Expert care
- Expert lists: American Partnership For Eosinophilic Disorders, Autoimmune Association, Vasculitis Foundation
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with American Partnership For Eosinophilic Disorders and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says the exact cause is unknown, but it is thought to be an autoimmune disorder, in which the immune system attacks the body's own tissues.
Also known as: allergic angiitides; allergic angiitides, granulomatous; allergic angiitis; allergic angiitis and granulomatosis; allergic angiitis, granulomatous; allergic granulomatoses
Patient organizations
- American Partnership For Eosinophilic DisordersEosinophilic granulomatosis with polyangiitis · United States
- Autoimmune AssociationEosinophilic granulomatosis with polyangiitis · United States
- Vasculitis FoundationEosinophilic granulomatosis with polyangiitis · United States
- American Lung AssociationEosinophilic granulomatosis with polyangiitis · United States
- The Lauren Currie Twilight FoundationEosinophilic granulomatosis with polyangiitis · Children's Cardiomyopathy Foundation
- National Kidney FoundationKidney diseases · United States
- Renal Support NetworkKidney diseases · United States
- The Foundation for Peripheral NeuropathyPeripheral neuropathy · United States
You are more than your diagnosis
Perspectives from people navigating life with Eosinophilic granulomatosis with polyangiitis.
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