Living with Eosinophilic gastroenteritis
A digestive condition where white blood cells called eosinophils build up and damage the gut.
Understanding Eosinophilic gastroenteritis
Symptoms usually start in adulthood. They can include stomach pain, nausea, vomiting, and trouble absorbing nutrients from food. Sometimes the intestines become blocked. Diagnosis is based on symptoms, an exam, lab tests, and ruling out more common conditions.
Signs & symptoms
Symptoms vary from person to person. GARD lists these among the most common:
- Belly pain
- Vomiting
- Diarrhea
- Trouble absorbing nutrients (malabsorption)
- Trouble swallowing (dysphagia)
- Low red blood cells (anemia)
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include digestive system specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
American Partnership For Eosinophilic Disorders, Autoimmune Association and CURED Foundation may keep lists of experts for this condition.
Care & treatment
- Care team
- Digestive system specialists (gastroenterologists)
- Expert care
- Expert lists: American Partnership For Eosinophilic Disorders, Autoimmune Association, CURED Foundation
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with American Partnership For Eosinophilic Disorders and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says the exact cause is unknown, but it may be due to an abnormal immune response to food allergies.
Also known as: ege; eosinophilic enteritis; eosinophilic enteropathy; eosinophilic gastroenterocolitis; eosinophilic gastroenteropathy; eosinophilic gastrointestinal disorders
Patient organizations
- American Partnership For Eosinophilic DisordersEosinophilic gastroenteritis · United States
- Autoimmune AssociationEosinophilic gastroenteritis · United States
- CURED FoundationEosinophilic gastroenteritis · United States
- Global Autoimmune InstituteEosinophilic gastroenteritis · United States
- AGA GI Patient CenterEosinophilic gastroenteritis · United States
- Allergy & Asthma Network Mothers of AsthmaticsEosinophilic gastroenteritis · United States
- Eosinophilic Family CoalitionEosinophilic gastroenteritis · Kids with Food Allergies
You are more than your diagnosis
Perspectives from people navigating life with Eosinophilic gastroenteritis.
Explore research for Eosinophilic gastroenteritis
Explore actively recruiting Eosinophilic gastroenteritis studies with HealthSpark.
Find actively recruiting studies for Eosinophilic gastroenteritis with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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