Living with Enteropathy-associated T-cell lymphoma
An uncommon cancer of immune cells that usually starts in the small intestine in adults.
Understanding Enteropathy-associated T-cell lymphoma
It usually arises in the middle or lower parts of the small intestine. Less often it starts in the stomach, colon, or outside the digestive tract. It is seen more often in regions where celiac disease is common. It occurs in adults.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet.
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include blood and bone marrow specialists, cancer specialists and digestive system specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Blood and bone marrow specialists (hematologists); Cancer specialists (oncologists); Digestive system specialists (gastroenterologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with HealthTree Foundation
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet. It notes the condition is seen more often in regions where celiac disease is common.
Also known as: eactl - enteropathy-associated t-cell lymphoma; eatl; eatl - enteropathy-associated t-cell lymphoma; eatl, type i; enteropathy associated t-cell lymphoma; enteropathy type (intestinal) t-cell lymphoma
Patient organizations
- HealthTree FoundationEnteropathy-associated T-cell lymphoma · United States
You are more than your diagnosis
Perspectives from people navigating life with Enteropathy-associated T-cell lymphoma.
Explore research for Enteropathy-associated T-cell lymphoma
Explore actively recruiting Enteropathy-associated T-cell lymphoma studies with HealthSpark.
Find actively recruiting studies for Enteropathy-associated T-cell lymphoma with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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