Living with Eccrine porocarcinoma
A rare skin cancer of the sweat glands that usually appears as a red bump in adults over 60.
Understanding Eccrine porocarcinoma
It may occur by chance or develop from a noncancerous skin tumor. It is usually found in adults older than 60 as a single red raised bump or thickened plaque, most often on the legs, head, or arms. Most people have no symptoms, but some notice bleeding or itching. Factors that may raise the risk include family history, a weakened immune system, and exposure to ultraviolet light or radiation.
Signs & symptoms
GARD doesn't list a separate symptom list for this condition, but the summary describes these features:
- A single red raised bump (nodule)
- A thickened or raised patch (plaque)
- Usually no symptoms
- Bleeding from the growth in some people
- Itching in some people
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Your doctor may refer you to a specialist who knows rare conditions.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- A doctor familiar with rare conditions, plus specialists as needed
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with rare disease patient organizations for support
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says it may occur by chance or develop from a noncancerous skin tumor. Risk may rise with family history, a weakened immune system, and exposure to UV light or radiation.
Also known as: eccrine porocarcinoma of skin; eccrine poroma, malignant; epidermotropic eccrine carcinoma; malignant eccrine poroma; porocarcinoma
Patient organizations
Rare-disease groups that can help
- Global GenesRare Diseases · United States
- National Organization for Rare DisordersRare Diseases · United States
- Genetic AllianceRare Diseases · United States
- RARE FoundationRare Diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Eccrine porocarcinoma.
Explore research for Eccrine porocarcinoma
Explore actively recruiting Eccrine porocarcinoma studies with HealthSpark.
Find actively recruiting studies for Eccrine porocarcinoma with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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