Living with Digestive system neuroendocrine neoplasm
A group of tumors in the digestive system that grow from hormone-producing nerve-like cells.
Understanding Digestive system neuroendocrine neoplasm
The group includes neuroendocrine tumors, such as well-differentiated endocrine tumors or carcinoid tumors, and neuroendocrine carcinomas, such as poorly differentiated, small cell, and large cell carcinomas.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet.
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include cancer specialists and hormone specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Neuroendocrine Tumor Research Foundation may keep lists of experts for this condition.
Care & treatment
- Care team
- Cancer specialists (oncologists); Hormone specialists (endocrinologists)
- Expert care
- Expert lists: Neuroendocrine Tumor Research Foundation
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Neuroendocrine Tumor Research Foundation and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: alimentary part of gastrointestinal system net; alimentary part of gastrointestinal system neuroendocrine neoplasm; alimentary part of gastrointestinal system neuroendocrine tumor; alimentary part of gastrointestinal system neuroendocrine tumor, well differentiated, low or intermediate grade; alimentary part of gastrointestinal system neuroendocrine tumour; carcinoid tumor of digestive system
Patient organizations
- Neuroendocrine Tumor Research FoundationDigestive system neuroendocrine neoplasm · United States
- International Neuroendocrine Cancer AllianceDigestive system neuroendocrine neoplasm · United States
- Neuroendocrine Cancer Awareness NetworkDigestive system neuroendocrine neoplasm · United States
- The Healing NET FoundationDigestive system neuroendocrine neoplasm · United States
You are more than your diagnosis
Perspectives from people navigating life with Digestive system neuroendocrine neoplasm.
Explore research for Digestive system neuroendocrine neoplasm
Explore actively recruiting Digestive system neuroendocrine neoplasm studies with HealthSpark.
Find actively recruiting studies for Digestive system neuroendocrine neoplasm with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
Powered by HealthSpark, our AI chat helper
I can help you find recruiting Digestive system neuroendocrine neoplasm studies. Enter a ZIP code, address or city below and I'll look within 50 miles.
Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
Get Signals for Digestive system neuroendocrine neoplasm
Stay in the loop with community stories and updates from medical researchers.
Create a living journal that talks back
HealthStory evolves private journaling with a living AI journal that talks back and asks thoughtful questions, helping you capture your Digestive system neuroendocrine neoplasm experiences more deeply and prepare for better conversations with your doctors and care team.
Your journal is private. Sharing your story publicly is a separate choice, made with Share your story above.