Living with Diffuse panbronchiolitis
A rare lung condition with inflammation of the small airways and long-term sinus problems, mainly reported in Japanese people.
Understanding Diffuse panbronchiolitis
It mainly occurs among Japanese people but has been reported in other populations. Symptoms usually start between the teenage years and the fifth decade of life and slowly get worse. GARD lists onset in adulthood.
Signs & symptoms
Symptoms vary from person to person. GARD lists these as common:
- Long-lasting sinus inflammation
- Cough that brings up mucus
- Shortness of breath with activity
- Wheezing
- Weight loss as symptoms worsen
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include lung and breathing specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Lung and breathing specialists (pulmonologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with American Lung Association
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says the exact cause is not known, but genetic, environmental, and body-wide factors appear to contribute.
Also known as: pblt
Patient organizations
- American Lung AssociationDiffuse panbronchiolitis · United States
You are more than your diagnosis
Perspectives from people navigating life with Diffuse panbronchiolitis.
Explore research for Diffuse panbronchiolitis
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- Recruiting studies from ClinicalTrials.gov
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- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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