Living with Diffuse astrocytoma
A slow-growing (low-grade) brain tumor that spreads into nearby brain tissue and usually affects young adults.
Understanding Diffuse astrocytoma
It typically affects young adults. GARD says these tumors tend to progress to anaplastic astrocytoma and glioblastoma. They are classified by IDH gene status as IDH-mutant, IDH-wildtype, or not otherwise specified. GARD lists onset from childhood to adulthood.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet.
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include brain and nervous system specialists and cancer specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Brain and nervous system specialists (neurologists); Cancer specialists (oncologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Pediatric Brain Tumor Foundation
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet. Tumors are classified by whether they have a change in the IDH genes.
Also known as: astrocytoma, diffuse; astrocytoma, diffuse, malignant; fibrillary astrocytoma (histologic variant); gemistocytic astrocytoma (histologic variant); grade ii astrocytic neoplasm; grade ii astrocytic tumor
Patient organizations
- Pediatric Brain Tumor FoundationDiffuse astrocytoma · United States
You are more than your diagnosis
Perspectives from people navigating life with Diffuse astrocytoma.
Explore research for Diffuse astrocytoma
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- Recruiting studies from ClinicalTrials.gov
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- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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