Living with Dementia associated with AIDS
A brain condition linked to HIV infection of the central nervous system that affects memory, concentration, and movement.
Understanding Dementia associated with AIDS
It is associated with acquired immunodeficiency syndrome (AIDS). It affects concentration, memory, and movement. Brain examination shows changes in the white matter and immune cells gathered around blood vessels.
Signs & symptoms
GARD doesn't list a symptom list. Based on its summary, features include:
- Trouble with concentration and memory
- Slow hand movements
- Poor coordination (ataxia)
- Loss of bladder control (incontinence)
- Apathy
- Walking difficulties
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Your doctor may refer you to a specialist who knows rare conditions.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- A doctor familiar with rare conditions, plus specialists as needed
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with rare disease patient organizations for support
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
It is associated with HIV-1 infection of the central nervous system in people with AIDS.
Also known as: acquired immune deficiency syndrome dementia complex; acquired immune deficiency syndrome-related dementia; adc - acquired immune deficiency syndrome dementia complex; aids (acquired immunodeficiency syndrome) dementia complex; aids dementia; aids dementia complex
Patient organizations
Rare-disease groups that can help
- Global GenesRare Diseases · United States
- National Organization for Rare DisordersRare Diseases · United States
- Genetic AllianceRare Diseases · United States
- RARE FoundationRare Diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Dementia associated with AIDS.
Explore research for Dementia associated with AIDS
Explore actively recruiting Dementia associated with AIDS studies with HealthSpark.
Find actively recruiting studies for Dementia associated with AIDS with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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