Living with Cutis gyrata of scalp
A condition with deep folds on the scalp that look like the folds of the brain, most often starting after puberty.
Understanding Cutis gyrata of scalp
It occurs more often in males and most often develops after puberty. It can occur alone or with a variety of underlying conditions or treatments, including nervous system or psychiatric conditions, eye differences, or inflammatory conditions. It can be seen at any time in life.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet. Its summary describes deep scalp folds.
- Deep folds on the scalp
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include skin, hair, and nail specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Skin, hair, and nail specialists (dermatologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Children's Skin Disease Foundation
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
Most isolated cases of unknown cause are sporadic. Autosomal recessive and autosomal dominant inheritance have been described. When it comes with another condition, the cause depends on that condition.
Also known as: cutis verticis gyrata; furrows in thickened skin on top of scalp; primary cutis verticis gyrata; scalp folds; scalp furrows; scalp rugae
Patient organizations
- Children's Skin Disease FoundationSkin diseases · United States
Broader rare-disease groups
- Global GenesRare Diseases · United States
- National Organization for Rare DisordersRare Diseases · United States
- Genetic AllianceRare Diseases · United States
- RARE FoundationRare Diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Cutis gyrata of scalp.
Explore research for Cutis gyrata of scalp
Explore actively recruiting Cutis gyrata of scalp studies with HealthSpark.
Find actively recruiting studies for Cutis gyrata of scalp with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
Powered by HealthSpark, our AI chat helper
I can help you find recruiting Cutis gyrata of scalp studies. Enter a ZIP code, address or city below and I'll look within 50 miles.
Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
Get Signals for Cutis gyrata of scalp
Stay in the loop with community stories and updates from medical researchers.
Create a living journal that talks back
HealthStory evolves private journaling with a living AI journal that talks back and asks thoughtful questions, helping you capture your Cutis gyrata of scalp experiences more deeply and prepare for better conversations with your doctors and care team.
Your journal is private. Sharing your story publicly is a separate choice, made with Share your story above.