Living with Cutaneous polyarteritis nodosa
A rare condition with inflammation of the small blood vessels in the skin and mild, short-lived joint or muscle symptoms.
Understanding Cutaneous polyarteritis nodosa
Other symptoms outside the skin are mild and temporary. They can include joint pain, arthritis, and muscle pain, and rarely nerve damage (peripheral neuropathy).
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet. Its summary mentions these:
- Inflammation of blood vessels in the skin
- Mild joint pain or arthritis
- Muscle pain
- Nerve damage (rare)
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include autoimmune and inflammatory disease specialists, brain and nervous system specialists and kidney specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Vasculitis Foundation and The Foundation for Peripheral Neuropathy may keep lists of experts for this condition.
Care & treatment
- Care team
- autoimmune and inflammatory disease specialists (rheumatologists); Brain and nervous system specialists (neurologists); Kidney specialists (nephrologists)
- Expert care
- Expert lists: Vasculitis Foundation, The Foundation for Peripheral Neuropathy
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Vasculitis Foundation and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: cutaneous livedo with nodules; cutaneous pan; cutaneous periarteritis nodosa; nodular livedo
Patient organizations
- Vasculitis FoundationCutaneous polyarteritis nodosa · United States
- National Kidney FoundationKidney diseases · United States
- Renal Support NetworkKidney diseases · United States
- The Foundation for Peripheral NeuropathyPeripheral neuropathy · United States
- Neuropathy Action FoundationPeripheral neuropathy · United States
You are more than your diagnosis
Perspectives from people navigating life with Cutaneous polyarteritis nodosa.
Explore research for Cutaneous polyarteritis nodosa
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- Recruiting studies from ClinicalTrials.gov
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- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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