Living with Cutaneous nodular amyloidosis
A rare skin condition in which protein builds up in the skin, forming yellowish waxy bumps.
Understanding Cutaneous nodular amyloidosis
It causes yellowish, waxy, crusted nodules and papules on the face, legs, trunk, scalp, and genitals. The primary localized form is the rarest form of primary cutaneous amyloidosis. It can be linked with connective tissue conditions such as Sjogren's syndrome and CREST syndrome.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet. Its summary mentions these:
- Yellowish waxy nodules
- Crusted bumps (papules)
- Skin lesions on the face, legs, trunk, scalp, or genitals
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include skin, hair, and nail specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Amyloidosis Support Groups Inc. may keep lists of experts for this condition.
Care & treatment
- Care team
- Skin, hair, and nail specialists (dermatologists)
- Expert care
- Expert lists: Amyloidosis Support Groups Inc.
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Amyloidosis Support Groups Inc. and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet. It can be linked with connective tissue disorders.
Also known as: amyloidosis cutis nodularis atrophicans; amyloidosis nodular localised cutaneous; amyloidosis nodular localized cutaneous; nlca; nodular amyloidosis; nodular cutaneous amyloidosis
Patient organizations
- Amyloidosis Support Groups Inc.Cutaneous nodular amyloidosis · United States
- Children's Skin Disease FoundationSkin diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Cutaneous nodular amyloidosis.
Explore research for Cutaneous nodular amyloidosis
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- Recruiting studies from ClinicalTrials.gov
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- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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