Living with Cutaneous mastocytoma
A skin condition in which too many mast cells build up and form one or more dark spots, plaques, or lumps.
Understanding Cutaneous mastocytoma
Mast cells are immune cells that release substances such as histamine. It can occur at any age.
Signs & symptoms
Symptoms vary from person to person. GARD lists these among the most common:
- Darker flat spots, bumps, or plaques
- Itching
- Skin lump (nodule)
- Skin that swells and reddens when rubbed (Darier's sign)
- Diarrhea
- Skin rash
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include blood and bone marrow specialists, cancer specialists and skin, hair, and nail specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
The Mast Cell Disease Society may keep lists of experts for this condition.
Care & treatment
- Care team
- Blood and bone marrow specialists (hematologists); Cancer specialists (oncologists); Skin, hair, and nail specialists (dermatologists)
- Expert care
- Expert lists: The Mast Cell Disease Society
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with The Mast Cell Disease Society and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: cutaneous local mastocytoma; multiple mastocytoma; solitary cutaneous mastocytoma; solitary mastocytoma; solitary mastocytoma of skin
Patient organizations
- The Mast Cell Disease SocietyCutaneous mastocytoma · United States
- Children's Skin Disease FoundationSkin diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Cutaneous mastocytoma.
Explore research for Cutaneous mastocytoma
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- Recruiting studies from ClinicalTrials.gov
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- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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