Living with Corticosteroid-sensitive aseptic abscess syndrome
A rare condition of the immune system with repeated fevers and abscesses that have no infection.
Understanding Corticosteroid-sensitive aseptic abscess syndrome
Autoinflammatory means the body's immune system causes inflammation on its own. The condition often starts in the teen years or adulthood. It can involve the liver, lymph nodes, and other organs.
Signs & symptoms
Symptoms vary from person to person. GARD lists these among the most common:
- Fever
- Abdominal pain
- Liver abscess
- Weight loss
- Anemia
- High neutrophil (white cell) count
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include autoimmune and inflammatory disease specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- autoimmune and inflammatory disease specialists (rheumatologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with rare disease patient organizations for support
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: aseptic abscesses syndrome; aseptic systemic abscesses; corticosteroid sensitive aseptic abscess syndrome; disseminated aseptic abscesses
Patient organizations
Rare-disease groups that can help
- Global GenesRare Diseases · United States
- National Organization for Rare DisordersRare Diseases · United States
- Genetic AllianceRare Diseases · United States
- RARE FoundationRare Diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Corticosteroid-sensitive aseptic abscess syndrome.
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