Living with Core binding factor acute myeloid leukemia
A form of blood cancer that starts in the bone marrow and lowers healthy blood cell counts.
Understanding Core binding factor acute myeloid leukemia
In acute myeloid leukemia, the bone marrow makes too many abnormal, immature white blood cells, which crowd out healthy blood cells. This leaves a shortage of all types of mature blood cells. Symptoms can include infections, tiredness, easy bruising, fever, and weight loss. Acute myeloid leukemia is generally a disease of older adults, but CBF-AML often begins in young adulthood and can occur in childhood.
Signs & symptoms
Symptoms vary from person to person. GARD's summary mentions these:
- Frequent infections (low white blood cells)
- Tiredness and weakness (anemia)
- Easy bruising and bleeding (low platelets)
- Fever
- Weight loss
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Your doctor may refer you to a specialist who knows rare conditions.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- A doctor familiar with rare conditions, plus specialists as needed
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with rare disease patient organizations for support
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: cbf-aml - core binding factor acute myeloid leukemia
Patient organizations
Rare-disease groups that can help
- Global GenesRare Diseases · United States
- National Organization for Rare DisordersRare Diseases · United States
- Genetic AllianceRare Diseases · United States
- RARE FoundationRare Diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Core binding factor acute myeloid leukemia.
Explore research for Core binding factor acute myeloid leukemia
Explore actively recruiting Core binding factor acute myeloid leukemia studies with HealthSpark.
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- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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