Living with Cor triatriatum sinister
A rare heart difference in which a membrane divides the left upper heart chamber into two parts.
Understanding Cor triatriatum sinister
The membrane can vary in size and shape and may have one or more openings. Severe cases usually appear in infancy and often come with other heart defects. In milder cases, diagnosis may come later in life. Symptoms depend on how much the membrane blocks blood flow and whether there are other heart defects. Some people have no symptoms.
Signs & symptoms
Symptoms vary from none to many. GARD's summary mentions these:
- Shortness of breath with exercise
- Signs of heart failure
- Lung congestion
- No symptoms in some people
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include heart and blood vessel specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Heart and blood vessel specialists (cardiologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with rare disease patient organizations for support
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: divided left atrium
Patient organizations
Rare-disease groups that can help
- Global GenesRare Diseases · United States
- National Organization for Rare DisordersRare Diseases · United States
- Genetic AllianceRare Diseases · United States
- RARE FoundationRare Diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Cor triatriatum sinister.
Explore research for Cor triatriatum sinister
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- Recruiting studies from ClinicalTrials.gov
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- Eligibility is confirmed by the study team
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