Living with Cor triatriatum dexter
A rare heart difference present from birth in which the right upper heart chamber is split into two parts.
Understanding Cor triatriatum dexter
It is caused by a leftover part of the early heart that normally disappears. It occurs on its own, not as part of a syndrome. Symptoms depend on how much the chamber is divided. Some people have none, while others have signs of narrowing of the tricuspid valve, irregular heartbeat, bluish skin, fainting, and right-sided heart failure. It may occur alone or with other heart defects.
Signs & symptoms
Symptoms vary from none to many. GARD's summary mentions these:
- No symptoms in some people
- Irregular heartbeat (atrial fibrillation)
- Bluish skin color (cyanosis)
- Fainting (syncope)
- Right-sided heart failure
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include heart and blood vessel specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Heart and blood vessel specialists (cardiologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with rare disease patient organizations for support
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says it comes from a leftover part of the early heart that persists in development. GARD doesn't describe a genetic cause.
Also known as: cor triatriatum dexter (disease); cor triatriatum dextrum; divided right atrium
Patient organizations
Rare-disease groups that can help
- Global GenesRare Diseases · United States
- National Organization for Rare DisordersRare Diseases · United States
- Genetic AllianceRare Diseases · United States
- RARE FoundationRare Diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Cor triatriatum dexter.
Explore research for Cor triatriatum dexter
Explore actively recruiting Cor triatriatum dexter studies with HealthSpark.
Find actively recruiting studies for Cor triatriatum dexter with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
Powered by HealthSpark, our AI chat helper
I can help you find recruiting Cor triatriatum dexter studies. Enter a ZIP code, address or city below and I'll look within 50 miles.
Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
Get Signals for Cor triatriatum dexter
Stay in the loop with community stories and updates from medical researchers.
Create a living journal that talks back
HealthStory evolves private journaling with a living AI journal that talks back and asks thoughtful questions, helping you capture your Cor triatriatum dexter experiences more deeply and prepare for better conversations with your doctors and care team.
Your journal is private. Sharing your story publicly is a separate choice, made with Share your story above.