Living with Chronic myelogenous leukemia, BCR-ABL1 positive
A slow-growing cancer of the bone marrow that makes too many white blood cells, usually beginning after age 60.
Understanding Chronic myelogenous leukemia, BCR-ABL1 positive
The marrow makes too many white blood cells. At first they work fairly normally, but later immature cells (blasts) build up and crowd out other blood cells, leading to anemia and low platelets. It usually begins after age 60. Many people develop an enlarged spleen. About half have no signs at first. GARD lists onset at a variety of ages.
Signs & symptoms
Symptoms vary from person to person. GARD lists these among the most common:
- Extreme tiredness (fatigue)
- Fever
- Weight loss
- Enlarged spleen, with a feeling of fullness
- Loss of appetite
- High white blood cell counts
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include blood and bone marrow specialists and cancer specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Aplastic Anemia and MDS International Foundation, Alex's Lemonade Stand Foundation and National CML Society may keep lists of experts for this condition.
Care & treatment
- Care team
- Blood and bone marrow specialists (hematologists); Cancer specialists (oncologists)
- Expert care
- Expert lists: Aplastic Anemia and MDS International Foundation, Alex's Lemonade Stand Foundation, National CML Society
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Aplastic Anemia and MDS International Foundation and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition beyond the name, which refers to the BCR-ABL1 change.
Also known as: bcr-abl positive chronic myelogenous leukaemia; bcr-abl positive chronic myelogenous leukemia; cgl - chronic granulocytic leukemia; chronic granulocytic leukaemia; chronic granulocytic leukemia; chronic myelocytic leukaemia
Patient organizations
- Aplastic Anemia and MDS International FoundationChronic myelogenous leukemia, BCR-ABL1 positive · United States
- Alex's Lemonade Stand FoundationChronic myelogenous leukemia, BCR-ABL1 positive · United States
- National CML SocietyChronic myelogenous leukemia, BCR-ABL1 positive · United States
- Blood Cancer UnitedBlood or bone marrow disease · United States
- HealthTree FoundationBlood or bone marrow disease · United States
You are more than your diagnosis
Perspectives from people navigating life with Chronic myelogenous leukemia, BCR-ABL1 positive.
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