Living with Chronic lymphocytic inflammation with pontine perivascular enhancement responsive to steroids
A rare brain inflammation condition (CLIPPERS) that mainly affects the brainstem and causes balance, speech, and vision problems.
Understanding Chronic lymphocytic inflammation with pontine perivascular enhancement responsive to steroids
It typically affects balance and coordination and the nerves of the head (cranial nerves). People may also have brainstem, spinal cord, and thinking symptoms. Brain MRI shows small, curved patches that light up with contrast mainly in the pons and cerebellum. GARD lists onset in adulthood.
Signs & symptoms
GARD doesn't list specific symptoms for this condition, but the summary describes these features:
- Poor balance when walking (gait ataxia)
- Slurred speech (dysarthria)
- Vision problems
- Tingling or odd sensations (paresthesias)
- Changes in thinking
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include brain and nervous system specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
National Ataxia Foundation may keep lists of experts for this condition.
Care & treatment
- Care team
- Brain and nervous system specialists (neurologists)
- Expert care
- Expert lists: National Ataxia Foundation
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with National Ataxia Foundation
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet. It describes inflammation with T cells around blood vessels in the brain.
Also known as: clippers; clippers - chronic lymphocytic inflammation with pontine perivascular enhancement responsive to steroids
Patient organizations
- National Ataxia FoundationChronic lymphocytic inflammation with pontine perivascular enhancement responsive to steroids · United States
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Perspectives from people navigating life with Chronic lymphocytic inflammation with pontine perivascular enhancement responsive to steroids.
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