Living with Chromophobe renal cell carcinoma
A rare type of kidney cancer that starts in the cells lining the kidney's small filtering tubes.
Understanding Chromophobe renal cell carcinoma
This cancer forms in the cells that line the small tubules in the kidney. These tubules help filter waste from the blood to make urine. GARD lists onset in adults and older adults.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet.
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include cancer specialists and kidney specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Kidney Cancer Association may keep lists of experts for this condition.
Care & treatment
- Care team
- Cancer specialists (oncologists); Kidney specialists (nephrologists)
- Expert care
- Expert lists: Kidney Cancer Association
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Kidney Cancer Association and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: chromophobe adenocarcinoma; chromophobe carcinoma; chromophobe carcinoma of kidney; chromophobe carcinoma of the kidney; chromophobe cell carcinoma of kidney; chromophobe cell carcinoma of the kidney
Patient organizations
- Kidney Cancer AssociationChromophobe renal cell carcinoma · United States
- American Cancer SocietyChromophobe renal cell carcinoma · United States
- KCCureChromophobe renal cell carcinoma · United States
- National Kidney FoundationKidney diseases · United States
- Renal Support NetworkKidney diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Chromophobe renal cell carcinoma.
Explore research for Chromophobe renal cell carcinoma
Explore actively recruiting Chromophobe renal cell carcinoma studies with HealthSpark.
Find actively recruiting studies for Chromophobe renal cell carcinoma with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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