Living with Choroid plexus carcinoma
A cancerous brain tumor that grows from the choroid plexus, the tissue that makes the fluid around the brain.
Understanding Choroid plexus carcinoma
The tumor usually grows into nearby brain structures. It often spreads through the cerebrospinal fluid (CSF), the fluid around the brain and spinal cord. GARD lists onset in childhood.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet.
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include brain and nervous system specialists and cancer specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Alex's Lemonade Stand Foundation may keep lists of experts for this condition.
Care & treatment
- Care team
- Brain and nervous system specialists (neurologists); Cancer specialists (oncologists)
- Expert care
- Expert lists: Alex's Lemonade Stand Foundation
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Alex's Lemonade Stand Foundation and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a specific cause for this condition. It is listed as autosomal dominant, so one changed copy of a gene can be enough.
Also known as: anaplastic choroid plexus papilloma; carcinoma of choroid plexus; carcinoma of the choroid plexus; carcinoma, choroid plexus, malignant; choroid plexus carcinoma (morphologic abnormality); choroid plexus papilloma, anaplastic
Patient organizations
- Alex's Lemonade Stand FoundationChoroid plexus carcinoma · United States
- Pediatric Brain Tumor FoundationChoroid plexus carcinoma · United States
You are more than your diagnosis
Perspectives from people navigating life with Choroid plexus carcinoma.
Explore research for Choroid plexus carcinoma
Explore actively recruiting Choroid plexus carcinoma studies with HealthSpark.
Find actively recruiting studies for Choroid plexus carcinoma with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
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- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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