Living with Childhood optic nerve glioma
A tumor on the optic tract, the pathway that carries vision signals from the eye to the brain, occurring in childhood.
Understanding Childhood optic nerve glioma
GARD gives limited detail about this condition. The optic tract carries visual information from the eyes to the brain.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet.
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Your doctor may refer you to a specialist who knows rare conditions.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Alex's Lemonade Stand Foundation may keep lists of experts for this condition.
Care & treatment
- Care team
- A doctor familiar with rare conditions, plus specialists as needed
- Expert care
- Expert lists: Alex's Lemonade Stand Foundation
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Alex's Lemonade Stand Foundation
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: childhood optic tract glioma; childhood visual pathway glioma; glioma of childhood visual pathway; glioma of paediatric visual pathway; glioma of pediatric visual pathway; glioma of the childhood visual pathway
Patient organizations
- Alex's Lemonade Stand FoundationChildhood optic nerve glioma · United States
You are more than your diagnosis
Perspectives from people navigating life with Childhood optic nerve glioma.
Explore research for Childhood optic nerve glioma
Explore actively recruiting Childhood optic nerve glioma studies with HealthSpark.
Find actively recruiting studies for Childhood optic nerve glioma with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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