Living with Childhood cerebral astrocytoma
A tumor from star-shaped brain cells that is found in the upper part of the brain in a child.
Understanding Childhood cerebral astrocytoma
GARD describes this as an astrocytoma that is not labeled as benign or malignant. Tumors in the lower part of the brain (the infratentorial region) are more common in children.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet.
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Your doctor may refer you to a specialist who knows rare conditions.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Alex's Lemonade Stand Foundation may keep lists of experts for this condition.
Care & treatment
- Care team
- A doctor familiar with rare conditions, plus specialists as needed
- Expert care
- Expert lists: Alex's Lemonade Stand Foundation
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Alex's Lemonade Stand Foundation
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: childhood astrocytic tumor of telencephalon; childhood astrocytic tumour of telencephalon; childhood astrocytoma of cerebrum; childhood astrocytoma of the cerebrum; paediatric astrocytoma of cerebrum; paediatric astrocytoma of the cerebrum
Patient organizations
- Alex's Lemonade Stand FoundationChildhood cerebral astrocytoma · United States
You are more than your diagnosis
Perspectives from people navigating life with Childhood cerebral astrocytoma.
Explore research for Childhood cerebral astrocytoma
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- Recruiting studies from ClinicalTrials.gov
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- Eligibility is confirmed by the study team
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