Living with Central polydactyly of fingers
A rare condition present from birth in which one of the middle fingers or toes is partly or fully doubled.
Understanding Central polydactyly of fingers
It most often affects the fourth finger or toe. It can affect one or both sides. It can occur alone or with other differences.
Signs & symptoms
GARD doesn't list a separate symptom list for this condition. Its summary describes this feature:
- Extra, fully or partly doubled middle finger or toe
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include bone and joint specialists and genetic specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Bone and joint specialists (orthopedists or orthopedic surgeons); Genetic specialists (geneticists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with rare disease patient organizations for support
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says changes in genes cause this condition, but does not list a specific gene or how it is inherited.
Also known as: central polydactyly; central polydactyly of hand; insertional polydactyly; intercalary polydactyly; mesoaxial polydactyly; mesoaxial polydactyly of fingers
Patient organizations
Rare-disease groups that can help
- Global GenesRare Diseases · United States
- National Organization for Rare DisordersRare Diseases · United States
- Genetic AllianceRare Diseases · United States
- RARE FoundationRare Diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Central polydactyly of fingers.
Explore research for Central polydactyly of fingers
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