Living with Central cloudy dystrophy of Francois
A very rare eye condition with cloudy spots in the cornea that usually does not affect vision.
Understanding Central cloudy dystrophy of Francois
The cloudy patches are polygon-shaped or rounded, with clear tissue around them. They generally do not affect vision. It starts in childhood.
Signs & symptoms
GARD doesn't list a separate symptom list for this condition. Its summary describes this feature:
- Cloudy patches in the cornea
- Usually no effect on vision
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include eye disease specialists and genetic specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Eye disease specialists (ophthalmologists); Genetic specialists (geneticists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Corneal Dystrophy Foundation
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says changes in genes cause this condition. It is inherited in an autosomal dominant way, so one changed copy of a gene can cause it. No specific gene is listed.
Also known as: ccdf; central cloudy corneal dystrophy of françois; central cloudy dystrophy of françois; francois' cloudy dystrophy of cornea
Patient organizations
- Corneal Dystrophy FoundationCentral cloudy dystrophy of Francois · United States
You are more than your diagnosis
Perspectives from people navigating life with Central cloudy dystrophy of Francois.
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