Living with CD4+/CD56+ hematodermic neoplasm
A rare, fast-growing blood cancer that shows up as skin tumors and involves the bone marrow, mostly in older adults.
Understanding CD4+/CD56+ hematodermic neoplasm
Recent evidence suggests the cancer cells come from a type of white blood cell called a plasmacytoid monocyte. People usually have skin tumors and bone marrow involvement. It mostly affects older adults.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet. Its summary describes these features:
- Tumors in the skin
- Cancer cells in the bone marrow
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include blood and bone marrow specialists and cancer specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Blood and bone marrow specialists (hematologists); Cancer specialists (oncologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with HealthTree Foundation
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: agranular cd4+ cd56+ hematodermic neoplasm/tumor; agranular cd4+ natural killer cell leukaemia; agranular cd4+ natural killer cell leukemia; blastic natural killer leukemia/lymphoma; blastic nk-cell lymphoma; blastic plasmacytoid dendritic cell
Patient organizations
- HealthTree FoundationCD4+/CD56+ hematodermic neoplasm · United States
You are more than your diagnosis
Perspectives from people navigating life with CD4+/CD56+ hematodermic neoplasm.
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- Recruiting studies from ClinicalTrials.gov
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