Living with Cavitary myiasis
A rare parasitic disease in which fly larvae infest body openings or organs.
Understanding Cavitary myiasis
Sites can include the ear, nose, mouth, urinary and genital area, brain, eye, intestines, and lungs. Symptoms depend on the site and how heavy the infestation is. It can occur at any time in life.
Signs & symptoms
Symptoms vary from person to person. GARD lists these among the signs:
- A feeling that something is in the body, sometimes moving
- Bleeding
- Pain
- Swelling
- Bad odor
- Itching
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include eye disease specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Eye disease specialists (ophthalmologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with rare disease patient organizations for support
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says the cause is infestation with the larvae of two-winged flies (dipterans).
Also known as: infestation of body cavity caused by fly larvae
Patient organizations
Rare-disease groups that can help
- Global GenesRare Diseases · United States
- National Organization for Rare DisordersRare Diseases · United States
- Genetic AllianceRare Diseases · United States
- RARE FoundationRare Diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Cavitary myiasis.
Explore research for Cavitary myiasis
Explore actively recruiting Cavitary myiasis studies with HealthSpark.
Find actively recruiting studies for Cavitary myiasis with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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