Living with Cardiac diverticulum
A very rare heart difference present from birth, with symptoms ranging from none to serious.
Understanding Cardiac diverticulum
The pouch usually comes from the tip of the left lower chamber (left ventricle). Less often it comes from the right chamber or from both. Effects range from no symptoms to serious problems with blood flow. It starts in the newborn and infant years.
Signs & symptoms
GARD doesn't list common symptoms for this condition. Its summary says effects range widely. Less common features listed include:
- Abnormal heart rate
- Abnormal shape of the aorta
- Abnormal origin of a coronary artery
- Abdominal wall defect
- Abnormality of the diaphragm
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include heart and blood vessel specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Heart and blood vessel specialists (cardiologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with rare disease patient organizations for support
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: cardiac diverticulum (disease); congenital cardiac diverticulum; ventricular diverticulum
Patient organizations
Rare-disease groups that can help
- Global GenesRare Diseases · United States
- National Organization for Rare DisordersRare Diseases · United States
- Genetic AllianceRare Diseases · United States
- RARE FoundationRare Diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Cardiac diverticulum.
Explore research for Cardiac diverticulum
Explore actively recruiting Cardiac diverticulum studies with HealthSpark.
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- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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