Living with Cardiac arrhythmia, ankyrin-B-related
A condition that affects the heart's rhythm, with problems that vary from person to person.
Understanding Cardiac arrhythmia, ankyrin-B-related
Heart rhythm is controlled by electrical signals. In this condition, different steps of that signaling can be disrupted. Some people have trouble with the SA node, which starts each heartbeat, and the heartbeat can be too slow (bradycardia). Problems vary among people.
Signs & symptoms
Symptoms vary from person to person. GARD lists these as less common features:
- Fainting spells
- Slow heartbeat (sinus bradycardia)
- Irregular heartbeat from the upper chambers
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Your doctor may refer you to a specialist who knows rare conditions.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- A doctor familiar with rare conditions, plus specialists as needed
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Simons Searchlight
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says this condition is inherited in an autosomal dominant way, so one changed copy of a gene can cause it.
Also known as: ankyrin-b syndrome; cardiac arrhythmia ankyrin-b related
Patient organizations
- Simons SearchlightCardiac arrhythmia, ankyrin-B-related · United States
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