Living with Carcinosarcoma of the corpus uteri
A rare uterine cancer that usually affects older women after menopause and often shows up as vaginal bleeding.
Understanding Carcinosarcoma of the corpus uteri
It usually affects older women who are past menopause. It tends to show up as vaginal bleeding. GARD lists it as affecting the urinary and reproductive systems.
Signs & symptoms
Symptoms vary from person to person. GARD's summary mentions this one:
- Vaginal bleeding
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include cancer specialists, gynecologic cancer specialists, maternal-fetal medicine specialists and women’s reproductive health specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
The Gynecological Carcinosarcoma Project may keep lists of experts for this condition.
Care & treatment
- Care team
- Cancer specialists (oncologists); Gynecologic cancer specialists (gynecologic oncologists); Maternal-fetal medicine specialists (pregnancy-related); Women’s reproductive health specialists (obstetricians / gynecologists)
- Expert care
- Expert lists: The Gynecological Carcinosarcoma Project
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with The Gynecological Carcinosarcoma Project and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: body of uterus carcinosarcoma; carcinosarcoma of corpus uteri; carcinosarcoma of the uterine body; carcinosarcoma of the uterine corpus; carcinosarcoma of uterine body; carcinosarcoma of uterine corpus
Patient organizations
- The Gynecological Carcinosarcoma ProjectCarcinosarcoma of the corpus uteri · United States
- SHARE: Cancer SupportCarcinosarcoma of the corpus uteri · United States
- American Cancer SocietyGynecological tumors · United States
You are more than your diagnosis
Perspectives from people navigating life with Carcinosarcoma of the corpus uteri.
Explore research for Carcinosarcoma of the corpus uteri
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- Recruiting studies from ClinicalTrials.gov
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- Eligibility is confirmed by the study team
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