Living with Carcinoid tumor
A rare, slow-growing cancer that usually starts in the digestive tract or the lungs.
Understanding Carcinoid tumor
They often cause no symptoms early on, so people are usually diagnosed around age 60. In later stages, the tumors can make hormones that cause carcinoid syndrome, with flushing of the face and upper chest, diarrhea, and trouble breathing. Surgery is the main treatment.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet. Its summary describes these:
- Often no symptoms in early stages
- Flushing of the face and upper chest
- Diarrhea
- Trouble breathing
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Your doctor may refer you to a specialist who knows rare conditions.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- A doctor familiar with rare conditions, plus specialists as needed
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with American Cancer Society
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: carcinoid; carcinoid tumor (disease); carcinoid tumors; carcinoid tumour; carcinoid tumour (disease); carcinoid tumours
Patient organizations
- American Cancer SocietyCarcinoid tumor · United States
You are more than your diagnosis
Perspectives from people navigating life with Carcinoid tumor.
Explore research for Carcinoid tumor
Explore actively recruiting Carcinoid tumor studies with HealthSpark.
Find actively recruiting studies for Carcinoid tumor with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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