Living with Cancrum oris
A rare disease that causes severe damage to the soft tissue and bone of the face, mostly in children.
Understanding Cancrum oris
"Gangrenous" means that body tissue is dying. GARD lists this condition as an infectious disease that mainly starts in childhood. GARD does not list other details.
Signs & symptoms
Symptoms vary from person to person. GARD's summary describes severe damage to tissue of the face.
- Severe destruction of soft tissue of the face
- Severe destruction of facial bone
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Your doctor may refer you to a specialist who knows rare conditions.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- A doctor familiar with rare conditions, plus specialists as needed
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with rare disease patient organizations for support
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD lists this condition as infectious, but doesn't describe a cause for it yet.
Also known as: acute gangrenous stomatitis; gangrenous stomatitis; noma
Patient organizations
Rare-disease groups that can help
- Global GenesRare Diseases · United States
- National Organization for Rare DisordersRare Diseases · United States
- Genetic AllianceRare Diseases · United States
- RARE FoundationRare Diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Cancrum oris.
Explore research for Cancrum oris
Explore actively recruiting Cancrum oris studies with HealthSpark.
Find actively recruiting studies for Cancrum oris with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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